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Explore Missing Milestones, Bottle Joey and more!

Governor Malloy has declared Saturday, April 25 as “Angelman Syndrome Awareness Day” in Connecticut.The Moretti family of Monroe Their three-year-old son, Joey, was diagnosed with it when he was just 19-months old. Tai Moretti says she and her husband knew something was wrong when Joey was only five-months old.He was missing milestones such as sitting up and rolling. He could not latch on a bottle.Joey is in Pre-K. He also has in-home physical, occupational, and speech therapy five days a…

Angelman Today November - December Edition 2014

Angleman Today November - December 2014 Online Magazine Dedicated to Angelman Syndrome In this edition: Epilepsy Awareness month International Diet Therapy Symposium Dr. Ron Thibert answers your questions Holiday Gift Guide Angelman Research by Professor David Segal Government Benefits by Eric Wright E.d. D. FAST Gala LGIT Recipes by Sybille Kraft Bellamy The History of Angelman Syndrome

Misdiagnosis: An Angelman Syndrome Story

The ASF has committed more than $1.5 million to establish 17 clinics across the country during the next few years. The ASF has strategically identified locations that are within a 4-hour driving distance for more than 85% of the AS population in the U.S.—meaning a majority of families (>85%) in the U.S. will not have to travel more than four hours to access their nearest clinic, which is a primary goal of the ASF’s in making the clinics as accessible as possible. Each clinic will receive a…