Prof Jim Gallagher, from the University of Liverpool, with our RARE Champions of Hope Award for Collaborations in Science. He received this award on the 21st, in the middle of our campaign, recognising the #DevelopAKUre consortium's hard work for our clinical trials. #HelpCureAKU
Nick, the father of two boys with Black Bone Disease; Sylvia, President of the Italian patient group aimAKU; and Andrea, part of the clinical trial team curing Black Bone Disease. Get involved with the #HelpCureAKU campaign now.
#HelpCureAKU goes multilingual! We're on a mission to get 'Help Us Cure Black Bone Disease' translated into as many languages as possible. Here's Hana and her parents holding up the slogan in Tamil, English and Malay.