Meet the brave 12-year-old who is the first black child ever diagnosed with fatal 'Benjamin Button' disorder rapidly aging her.Ontlametse Phalatse lives in South Africa with her mother and dreams of being a psychologist. Her father left when she was 3 and she and her mother live on assistance Flies to Boston twice a year for treatment thanks to a charitable foundation Progeria sufferers rarely live past 21.
Hutchinson-Gilford Progeria Syndrome. These children give the distinct physical impression of being many decades older that they really are. However, HGPS children are neurologically unaffected, so that their emotional and developmental stages are age-appropriate.
Laymen have called it the “aging disease,” but the correct medical term is Hutchinson-Gilford Progeria Syndrome. The medical community generally refers to it as progeria. The word Progeria comes from the Greek progeros, meaning 'prematurely old'. Progeria is a rare, progressive, genetic disorder causing children to age rapidly.
The person I'm responding this from, put this photo on the board "aliens and extraterrestrials!" That is so sad to even think they would put that there. His original caption was!! "The aliens are already here!!"